So today is my first time posting a blog. Yeah for me! Yet a little scary at the same time...I have wanted to start a blog for awhile now, just haven't really had the time to do it I guess. Until now! This is going to be a blog about everything that is happening in Jonathan and I's life, just a way to keep in touch with family and friends that we don't get to see or talk to all that much. As a lot of people know already, I was recently diagnosed with Non-Hodgkin's Mediastinum B-Cell Lymphoma. Yes, I have the big ugly "C" word (cancer). What's even worse was that I went to the hospital because of symptoms on my 28th Birthday! You can't imagine what it's like being told you have a large mass in your chest on your birthday of all days. Not that any other day would be any better to have someone tell you that! Monday (June 4th) was my first day of Chemo treatment. It was a long and exhausting day. Who knew sitting in a chair for 7 hours while drugs are being pumped into you, would be so tiring (all the people that have gone through this I'm sure). The nurse just said, "yes it's hard work killing cancer cells!" She was definitely right about that.
My oncologist said that the largest diameter of the mass is 8cm. That is massive for a tiny person like me to have sitting in my chest. I am considered a Stage 2 because it is located in both halves of my chest basically. The whole size of the tumor is about the size of an orange or the size of Jonathan's fist. When I originally went to the hospital I went in because the doctors kept telling me I just had allergies (coughing a lot and really flemmy). Along with those symptoms though came getting tired and having a racing heart just walking around and up stairs and being really clammy and just plain sick feeling. So I decided to go to the ER to find out if it really was just "allergies." That's when a bunch of tests were run and the mass was found. I ended up staying in the hospital for a week after that. I have had so many tests and procedures done on me that I would have never guessed I would go through ever especially only at 28! They say this type of cancer can be common for young women though. Lymphoma is a cancer that they don't really know how people get it. It's not really genetic and won't necessarily be passed on to future generations of little Carly and Jonathan's, if we are able to have little Nelson's later on in life. It could be environmental or just the fact that my cells decided to go rouge and make cancer cells!
Anyways, as of today I'm doing well and resting a lot. I hope I will be able to do a good job keeping everyone posted on the day to day happenings of what's going on during my treatment and recovery. I will be going through treatment through September for Chemo and then I will have Radiation after that for 4 weeks. I'm hoping my Thanksgiving I will be done with treatment and on the road to recovery from all the chemo drugs. But that's just a hope, I won't be back to my full self for a least a year with all those drugs being pumped in my system I'm sure.
I look forward to hearing from everyone that wants to comment! I really want to thank everyone that has helped Jonathan and I so far. We really feel so blessed to have so many people care about us, words cant even express the thoughtfulness and generosity of the people in our lives. Thank you so much!
That was a GREAT first post! You're courage and bravery are amazing Carly! Need any iTunes cards for games to keep you occupied while getting chemo? Maybe a book or four?!
ReplyDeleteI have been given so many books, I don't know if I'll even be able to finish them all!
DeleteGreat post Carly!! We miss u and hope u stay stronger and look forward to our next visit!! Chloe says she misses u :) that girl could make u cry
ReplyDeleteI can't wait to see you guys again either! I miss my little munchkin and I can't wait until I feel better and can kick that soccer ball around with her!
DeleteThis is a beautiful post Carly...XO. I've been thinking and thinking of you, sending healing and strength for such a scary journey. Your words here are extremely meaningful as well as brave. Thank you for sharing your story with us! I would like to do something for you and hopefully will think of it after reading your posts. If you are needing book recommendations/loans, I have an extensive library, LOL. Just post what you like to read and I'll get the hint...(-: You are the strongest and bravest young woman I've ever known to face such a battle. You are already winning by starting this blog, yay, you GO girl. BLESS YOU.
ReplyDeleteAs of right now, I have enough books, if I start running short though I will definitely let you know! haha I'm going to try and stay brave and positive through the whole thing, but I'm sure there will be times when it will be really rough and I won't feel as brave and strong as everyone say I am! Everyone's words of confidence and bravery and everything else will be good to read!
DeleteWell, gone are the days where our biggest worry in life was if our ozone analyzer was calibrated correctly. I am thinking about you often and hope you let me know if there is anything I can do to help. I recently found one of our air pollution control lab reports and I just couldn't throw it away. Let me know if you want me to dig it back up for some light reading! We were pretty impressive :)
ReplyDeleteWhen I saw this post, it brought a smile to my face. I remember those days of struggling through that class. We were pretty impressive and it's amazing that we passed that class!
DeleteLove the blog! Look forward to hearing how you are doing through this adventure of the ugly "C," and all the fun adventures you have to look forward to after it is done! Have a great day :)
ReplyDeleteRH
Good job with your first blog...you have a great way of putting your thought downs. What a great way to express your feelings as you go though the next year as well for your friends and family to stay connected. Thank you and again let me know of any needs!
ReplyDeleteLove and prayers - Jenn
Thank you! It will be a work in progress that's for sure.
DeleteHey Carly, we just wanted to say we love your post and we are looking forward to hearing about how your recovery goes. Keep being positive and lean on us (your friends) when you need it. Especially on those crazy days, that is what we are here for. we all love you
ReplyDeletethinking and praying for you often - Letti and the fam
I miss you guys! I miss my favorite Fisher Girls! I hope you all are loving your new home. Everything won't be the same without you guys here!
DeleteYAY!!!!I'M here,,took me long enough,,lol,,but I dont know once I close it if I will be able to find you again or not we will see,,Im so glad you started this,,this is just cool,,an your so amazing,that you will get through this with no problem,,we love you,,hope to see you soon!!!!!
ReplyDeleteYeah! you got it to work!
DeleteCarly,
ReplyDeleteGlad you got this figured out so everyone can post. This is an awesome idea. What a great way to keep everyone posted on what is going on and a nice way for you to be able to let a few things out as well.
Jon is your ROCK, and everyone else is a supporting stone in your damn to control this rough water. Soon it will be flat and calm, and you two will have a life of smooth sailing ahead of you.
Brodie
Hi Carly,
ReplyDeleteThis blog is awesome! You have been in my prayers. Thank you for letting us be part of your journey though this. We miss you at work!
Mary
I'm glad I got to see you this week at work! Thank you for the post and for reading my blog!
DeleteHi Carly,
ReplyDeleteThis is Nancy Mom. Your post is wonderful. It really is a great way to keep everyone in the loop. I will send the address on to relatives & close friends. We all love you and send our prayers and thoughts and hugs your way. You are so special. Stay positive! Love you!
Thank you and I love you too!
DeleteHi Carly,
ReplyDeleteThis blog is fantastic! Thank you for sharing it with us! You are always in our thoughts and prayers. If there is ever anything we can do, please don't hesitate to ask. You have blessed our family since the day you entered Jonathan's life and we love you! Stay strong!
You all are so nice, thank you for reading and posting. I love it!
DeleteHey Carly! Mike and I were so happy to get to spend some time with you and Jonathan in April! Wish we were closer so we could be there with you during your treatment and recovery, but know that you are in our prayers everyday! We love you!
ReplyDeleteI'm glad we got to spend time with you guys too! It was so nice to talk to you guys!
DeleteCarly,
ReplyDeleteYou did awesome! I know you can beat this and it looks like there are tons of people praying and loving on you:) you are so brave xoxo
Jodi
It was so great to see you last night. Hanging out with you guys through my treatments will be so nice. It is something to take my mind off things and have a girls night once in awhile!
Delete*Carly*
ReplyDeleteHey! I Love the blog! It was nice seeing you and Jonathan I wish we were able to see you guys more. :-) we are thinking about you all the time! Love you guys! :)
-Kiley
It was good to see you too. I wish we could do it more often!
DeleteCarly, I am Allie's Grandma and have been asking Allie how you were doing. Thanks for the info, your blog is very good. I have been cancer free for 4 years, but did not have as servere issues you have. I did go to the feel great-look good class and it was fun. Hang in there we are all pulling for you. Wanda
ReplyDelete